After the visit to Dr. Katz my mind is all over the place. It is all I can think about. When I wake up, when I go to sleep and numerous times throughout the day is thinking about my cancer and what my next step should be.
I am very worried because I am starting to feel something in my right lower back again. It was the same, to a lesser extent, as what I had in August 2010....when all of this started.
Dr. Katz told me I have 2 options. RPLND surgery or monitor. As the tumor is 4.3 cm then the urologist all think that I need the RPLND. If it was smaller than 3cm then it would be better to monitor it. So I have told myself I need this surgery and I will get it done. Now the question is, who does it? I have done a lot of reading on the web and have got on a great website, thanks for finding it Jennifer!, called tc-cancer.com which wraps my head around RPLND surgery and who does it. Dr. Foster in Indianapolis is my number 1 guy. He works with Dr. Einhorn who worked very closely to Lance Armstrong. Dr. Foster has been doing this type of surgery for many years and, from what I have read, knows his stuff. Dr. Katz suggested I talk to an excellent Dr. in St. Louis, Dr. Kibel. This doctor hasn't been doing it as long and I he is my 2nd pick right now. St. Louis is closer and easier for Jen's family and added cost, but I'm not going to let logistics make my mind up. I simply want the best of the best.... and in my mind that is Dr. Foster.
I see Dr. Travis on Tuesday (there is a storm coming through that is supposed to hit Monday night. I hope this doesn't cancel Dr. Travis appointment) and will make sure I get a referral to go see Dr. Foster ASAP. With my back hurting, I feel I need to work quickly on this.
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